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WearyBonnie

3TomatoesShort@disabled.social

<p>Chronically ill with <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="tag">#<span>POTS</span></a>, living on unceded Whadjuk Noongar land - Boorloo/Perth, Western Australia. </p><p>Please don&#39;t give me unsolicited advice. If you desperately think your information may be useful, just ask first? </p><p>Quietly obsessed with the musical Tanz der Vampire. Occasional cross stitcher. Not complicit in the spread of preventable disease.</p><p>~* Transphobic &#39;feminism&#39; is garbage *~</p><p>Economies are supposed to serve people, people are not supposed to serve economies 😀</p>

Posts

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    #3GoodThings today. 1. Waking up with 100 body battery on my GarminπŸ”‹ 2. Being well enough to take my kiddo to an appointment when plan A fell through 🦷 3. Bedtime 😭

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    #3GoodThings today. 1. Got a lot of things ticked off the to-do list βœ… 2. Unexpectedly had a brief mood where I felt like dealing with some of the crap in my inbox πŸ“¨ 3. Hoooopefully the package I&#39;m expecting which might gradually make life easier might arrive tomorrow πŸ“¦

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    #3GoodThings today. 1. Eldest got to school on time πŸŽ’ 2. Clinic appointment went well, got the script I needed βš•οΈ 3. I think one of my relatives with similar under-studied, under-diagnosed conditions to me is finally getting some decent healthcare 🀞🏻

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    #3GoodThings today. 1. I didn&#39;t need to do any laundry today πŸ’ƒπŸ» 2. It seems like the youngest&#39;s new medications are starting to help 🀞🏻 3. My husband only had a little bit of vertigo, not a full blown attack πŸ˜΅β€πŸ’«

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    #3GoodThings today. 1. No weird appendixy pain today πŸ₯³ 2. Got a bunch more reorganising done in the kids&#39; room: now the floor is basically clear, and there&#39;s only one box of mixed random junk left 🧹 3. The children spent quite a while playing together without it devolving into fisticuffs πŸ‘«

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    #3GoodThings today. 1. The mystery pain has responded politely to antihistamines and antiprostaglandins, and gone quiet for now 🀞🏻 2. Youngest agreed to a small temporary change which should significantly cut down my housework load 🀞🏻 3. Husband seems to be recovering well from his vertigo attack 🀞🏻

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    Perth Zoo farewells one of world’s oldest Sumutran orangutans, 56-year-old Puteri | PerthNow https://www.perthnow.com.au/news/animals/perth-zoo-farewells-one-of-worlds-oldest-sumutran-orangutans-56-year-old-puteri--c-22982537 &gt; Perth Zoo has farewelled one of its longest residents, a beloved 56-year-old Sumatran orangutan, known as Puteri.

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    #3GoodThings today. 1. A treasured thing was lost, and while we haven&#39;t yet found it, I did get a LOT of tidying/putting away/binning done while we were hunting for it πŸ”Ž 2. The soothing warmth and vibration of my massage mat 🫨 3. Made some more good progress with my Christmas shopping 🎁

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    Dear Dog I am sick of people telling me what I should do. I know perfectly well what I should do; I am not well enough to do it.

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    #3GoodThings today. 1. Very grateful to get a same day ear wax cleaning appointment for my eldest πŸ‘‚πŸ» 2. Youngest feral child deigned to bathe πŸ› 3. Made a bit of progress with my Christmas shopping 🎁

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    Wtf do websites for holiday accommodation all insist on you choosing dates before letting you see their accommodation? I can&#39;t be the only person in the world who has no dates in mind, who just wants to find some suitable accommodation and _maybe_ think about dates after that?? Give me an option to see everything you have, without me having to pull random dates out of my butt! πŸ˜‘

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    I didn&#39;t do #3GoodThings already did I? 1. The very precious and treasured Dawg (squishy toy) which was discovered missing at bedtime turned up after an exhaustive search 🐢 2. Clean floors in most of the house 🧹 3. Feeling less despairing than usual 🀷🏻

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    #3GoodThings today. 1. I have all the paperwork ready, tomorrow I can email kiddo&#39;s new school and formally accept a position next year πŸ₯³ 2. I had a coffee today and the pain which I thought might have been triggered by coffee before hasn&#39;t returned yet. Maybe I won&#39;t have to give up coffee! β˜• 3. There were so many little flying insects and various birds fluttering through my garden today πŸͺ°

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    Finally!! After many walks in the hopes of seeing bandicoots (which are increasingly common in my parents&#39; neighbourhood), my boys have seen one :)

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    #3GoodThings today. 1. Enjoying the flowers and foliage in my garden 🌼 2. Had some good ideas for Christmas presents for my kiddos 🎁 3. Read through the paperwork from kiddo&#39;s new school; super excited for him to switch next year πŸŽ’

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    #3GoodThings today. 1. My worm farm is looking very happy, and also full of worm eggs πŸͺ± 2. I found a comfy, convenient, POTS-friendly way to stretch some of my constantly-tense muscles 🧘🏻 3. My kiddo got a place at the very small autistic-kids-only school we applied for πŸ₯³

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    Eldest got a place in the specialist school πŸ₯³

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    #3GoodThings today. 1. My verge garden looks very nice and brings me much joy, in its temporary less-weedy state 🏑 2. Some Christmas decorations I ordered arrived, and they also bring me joy 🦌 3. Got one step closer to being ready to adopt rats (commissioned a part for the cage) πŸ€

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    Boorloo/Perth folks, have any of you had dealings with the Autism Association of WA? Any strong feelings for or against as a potential service provider for my kiddo?

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    Yay!! I was doing some weeding out the front and discovered that the successful grevillea hasn&#39;t completely crowded out the little morning iris plant: it&#39;s still there, and actually looking quite substantial! I have pruned around it so that it can get a bit of sunshine and air flow 😍

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    My poor husband has been fasting for a blood test, and just sat waiting for an hour in the waiting room only to be told he has been fasting for too long 😭 That would have been helpful information for someone to have given him with the pathology form?? 😭

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    #3GoodThings today. 1. I got to pat a very good doggo πŸ• 2. Maybe a little progress with one of the kids&#39; medical issues 🀞🏻 3. Rest of the family enjoyed watching most of The Fellowship of the Ring, while I enjoyed having some alone time πŸ§™πŸ»

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    #3GoodThings today. 1. My household menfolk had a good time playing cricket at the park, which I&#39;m sure was good for all of them, even if my poor husband is still exhausted 🏏 2. Only piffling little aches and pains today, no medical emergencies βš•οΈ 3. A comfy bed to rest in and plenty of things to watch while I rest πŸ›οΈ

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    #3GoodThings today. 1. Perfectly timed half price offers in the grocery app πŸ›’ 2. Only having a large hill of laundry to do, rather than a small mountain 🧺 3. Having my comfy bed to lie in when I need rest πŸ›οΈ

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    Aus POTS fam, the Australian #POTS Foundation has a webinar coming up called &quot;Living with POTS Community Q &amp; A&quot;. If you sign up as a member (for free), you can get a 100% discount on the webinar tickets, so that&#39;s also free. And they&#39;re going to email recordings out after the webinar, so there&#39;s no stress about missing it if you&#39;re having a bad day. https://potsfoundation.org.au/ to become a member. Hopefully you would get an email about the webinar but if not, ma...

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    #3GoodThings today. 1. Feeling pretty good! 😌 2. My eldest also felt pretty good today - compression socks to the rescue 🧦 3. Watched a fun movie I enjoyed 🎬

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    [Australian context] Sign the National Healthy Air Strategy - Centre for Safe Air https://safeair.org.au/national-healthy-air-strategy/ &gt; Australia needs a National Healthy Air Strategy. Use this form to join the Prebudget Submission and Consensus Statement. You can sign as an individual, you don&#39;t need to have a professional interest.

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    Huh. Just came across a profile that said &quot;if you don&#39;t like unsolicited advice please block me&quot; and I super appreciate that, but I still don&#39;t get it. They said they don&#39;t like seeing people have a problem that they could help with, but why not offer _solicited_ advice? &quot;Hey, I have some relevant info/experience here, are you interested?&quot; Why does it feel better to give it as both an unsolicited interaction, and as advice (as opposed to info/experience)?

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    #3GoodThings today. 1. Finally making it to bed for the night πŸ›οΈ 2. It&#39;s a long weekend for my husband this weekend 😎 3. A 2 week break from lunchboxes and clean uniforms!! But sadly not from alarm clocks 🍱

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    Watching a bear mama and 2 cubs grazing on grass in the sunshine on the other side of the world, in real time. The internet still has good bits πŸ₯°